Solid day...quick update

Sorry about yesterday's post fail.  Didn't work from my mobile, erased everything I had written after my post to facebook.

Jo continues to improve every day.  Each day it seems every indicator shows some improvement.  He is oxygenating as good as you or I would with  no support.  His heart rate is solid.  His feedings increase every day and yesterday night we changed from continuous feeding to a more meal time type of eating via G Tube.  The sutures were removed from the G tube, and everything looks great to the surgeon.

Breathing overall has been where we are most encouraged to see the improvement each day.  The tracheotomy is tentatively scheduled for Tuesday, if needed.   3 things drive the need:

1. Trouble clearing his airway from normal secretions.  Jo is handling this on his own with zero need for assistance  (suctioning).  He has a strong normal cough to clear his airway.
2. Muscular support for his airway is normal.  Jo no longer uses a neck brace to raise his chin, he does it on his own.  He still sounds at times like someone snoring when he sleeps, it seems each day this gets a little better.
3. His oxygenation  is solid.  His labored breathing gets better everyday.  Several times a day for hours he has no labor when breathing at all.

Based on this I think we have shot of not performing the surgery.  Let's focus some prayers here,  Jo will be re-evaluated on Monday!

Jo still shows movement beneath his closed eyes.  Both eyes have been more reactive to light lately.  Jo continues to blink without opening his eyes, and he seems to respond to requests to open eyes with visible movement below the closed eyelid.  Jo is fighting so hard to see us again!

Today's med plan is pretty basic, work on Jo's feeding schedule, mom and dad learn about home care, and continue orthopedic and physical therapy.  It is conceivable that Jo could be home before June 1!!!

Jojobinks mommy and daddy are here and we see you fighting to get back to us and we are so proud!  Every day your journey with the lord is healing you.  He is with you lifting you fro the fog day by day.  We know we will see those beautiful eyes soon!  We love you to the moon and back sweet angel, we miss you so much!!