Summer seems to have officially started in Washington but we all know we can count on nothing until July 4th or later. It is still nice to have such beautiful weather, always bitter sweet when you see how much jo wants to be back to himself, it can be heartbreaking. He seems vividly aware of what is going on outside, he can hear perfectly and the sounds of kids having fun clearly impacts his mood.
He is still receiving steady, regular, and consistent therapy 3-4 hours a day. Up in his chair, up in his stander, lying face down, sitting up straight, and even holding his posture on his own! It is exhausting work for Jo, he slowly getting back to where he was post pump surgery, and his casts will be removed in two weeks from his orthopedic surgery. He is doing very well all around.
The family is fairing well, Jimmy is behaving, and the girls are anxious to start their summer. We are talking with an amazing realtor about trying to find a single level home ASAP. We are also looking at building a ramp to the second floor or even elevator options. We cannot continue the way we are with one true living space upstairs (kitchen , dining room) and Jo downstairs. He has not been upstairs since the injury and we simply can't operate as a segregated house, Jo needs people close for company more than care, and we need him near us.
Those of you who follow the post might have noticed the FUNDRAISER added to the post. I shared the on facebook as well.
Text from facebook post:
So here is where we are, just over a year since the day that would forever change our lives. Most of you know the story, know the intimate details of Jo's recovery thus far, check the archives at www.jowitz.com. The ups and downs, the amazing fighter he still is, the miracle before us. We have to have him closer, the idea of a home without Jo surrounded by his family, or us in his presence is a pain we can't expect to endure for much longer.
He is with us, healing each day, stronger than we ever imagined and now we need him close, accessible all day. He has not been upstairs in our split level home since the day of the accident. The last day he sat at our dinner table was just hours before he was airlifted to children's hospital for life-saving surgery. It doesn't work, we have to be close, Jo may be close to controlling his own wheelchair and needs to be able to access all of us. We love our home and would never imagine moving but it is where we are, maybe for the next 5 years, perhaps the rest of our lives we need access. We need each other close to lift our spirits and let us all heal, it is our reality.
Take the time to get to know Jo and our journey. You'll understand why we need to change our home to one level for everyone.
Most have already given so much I am only asking that you share Jo's story far, wide, and often. Make sure everyone you know hears about Jo, where's a helmet, and thinks about Jo. Think of our family. I've learned that I am surrounded by an amazing community of people who care so much for us that I could never ask for more. They are the reason we've survived this long.
Keep us in your thoughts and prayers and thank you for all that you've done, we feel your love each and every day. Jo's got this, and we couldn't be more grateful!
We are reaching out to each of you not to do more but to share Jo's story, this blog, and his fundraiser far and wide. Forward it to any one you know, encourage them to read about Jo's journey. Get to know us and our family's journey in faith in hope. Perhaps someone has the means to help us get into a different home, perhaps not, it doesn't matter really. We feel so loved and blesses everyday, we could never ask for more. Pray if you do, think of us often if not, but always know we are moving forward! Jo is coming back in full, it wont be fast, it wont be easy, but we know it to be true. Tell everyone you know to where a helmet! Share on facebook, twitter, instagram, or whatever social media you use. Get his story out there for perspective on life, the joy of faith, and the power of God's healing. Be positive! Whether we reach our goal, or never receive another dollar we will find a way.
Jo's dextirity is returning fast thanks to his therapy. A motorized chair may not be far away. Insurance continues to deny far more than they approve and we will not be deterred. We've been told getting approval for the chair is always a challenge. Jo needs to regain some personal freedom! We need a place he can move unencumbered, we need a one level home, either now, or in the next year, it is our reality. We will save til we get what we need.
So share, share, share, everywhere.
Jojobinks you are a warrior and your warrior followers are on the march. We will get this fixed! You are doing amazing! We love you to the moon and back sweet angel!