Journal entry by james witzman — 5/3/2017
Jo is still stable and scheduled for an MRI in the next hour.
The Dr. met with us to go over Jo's current condition and expectations following the MRI. The discussion was devastating on many levels, but hope is not lost.
They expected Jo to be further along in his recovery overall. While we knew the damage to the left side was serious, the Dr. would have liked to see at least a little more activity from Jo since the weekend.
Jo’s sedation has been decreased but following this weekend's setback he is showing less progression in his nuero evals. His left eye remains dilated, he is makingless purposeful movements than before.
Jo has seen a gradual reduction in heart rate ever since the day of the injury. Not significant overall but declining slowly throughout his week here. The Dr. is worried about what that might mean to his nuero activity.
Jo is still intubated and isn’t performing above the machine. Obviously seeing strong respiratory indications would be a good sign that his brain can still operate breathing on his own.
Jo is young and strong, children are amazingly resilient.
Jo made a purposeful movement as early as a few hours ago.
Prior to the setback this weekend Jo was able to breath efficiently on his own with no complications. It is unknown whether he could breathe without assistance at this time due to current treatment plan.
Regardless of results of the MRI it is still their best guess. Every person is different and damage is never “typical”, it’s impacts vary widely.
Jo’s team of doctors will review the MRI, meet with even more doctors, and eventually meet with Alex and I to discuss what they see. Based on the results we will discuss the logical next step for removing support slowly to test his abilities. This will be a gradual process, the first hurdle being removal of the breathing tube.
I’ve never needed more prayer and positive thinking in life. I’ve never experienced this type pain, or this much sorrow. We are bringing his siblings to the hospital to be close to us at this incredibly difficult time.
To our baby boy,
Jojobinks you mean the world to your family. Your bright smile and subtle wit lighten our day and lift us on high. Your smile melts our hearts and you are loved immensely. Fight my son, we need you here with us. Life would not be the same without you. God has you in his hands.
We love you to the moon and back sweet angel, mommy and daddy are here.