Jo is steady and strong. This morning he had his CT scan to check readiness for the skull replacement surgery. It is described as a standard process, and I guess if you're a nuerosurgeon it is pretty mundane?
Mom and dad are ready for the last surgery to be over, and to put the risks of any operations behind us. It's standard for the doc to go over all the things that could go wrong, right before you sign the waiver. Kinda funny, like we would say no to putting it back? The medical release process is something no parent should have to get used to, we know it by heart. They will open an incision large enough to place the skull "comfortably back in place", staple the skin closed and call it good, yikes.
Mom and dad are also learning the ins and outs of trach care. Nothing is too intimidating yet, seems like we can handle it. If it wasn't our kid, we would be terrified to do it, but Jo gives us strength we did not know we had. One thing that is scary is the number of times they mention, "call 911" if this, that, or the other happens. I don't know about you, but we have never called 911 for any reason, Lord please make sure we never have to. They have a pretty robust "hands on" training program for home care, and we need to sign off before we are allowed to leave! We have time left before discharge to get our act together, we are confident we can do anything at this point!
Discharge is still at least a week or two away (in our opinion). He will recover from tomorrow's procedure for a few days, pushing into the weekend. We will continue to learn trach care over and over and over. He will have the staples removed in 1 to 2 weeks. We also have to have the house completely set up to leave, bed, supplies, equipment, etc. etc. We still have to interview nurses, if you know anyone looking for a great gig, with a good family, and flexible hours let us know! The pay is not as good as hospital nurses, but for the a person paying for child care to go to work, it could be a nice offset to bring your kid to work!
Not much else to report today. Jo is doing great. We are very blessed to have all of your support, we don't know what we do without it!
Jojobinks mom and dad are here and you are doing great. You still rest alot but we know that means you are healing. Be strong tomorrow, it is just another step on your journey with God, he is with you. We have faith it will be a quick and easy procedure and you will heal quickly. Before you know it, you will be home with us, something we wanted for so long! We love you to the moon and back sweet angel, you've got this.