Jo has been an all-star the past few weeks, each day he shows more progress. In fact, he does so well at times it makes me nervous about posting, then I realize God is in control, he is working his way back.
Jo is showing cognitive progress!
I'll spare the post from detailed rants about insurance. The real health care crisis is less about coverage and more about a system designed to send any family, covered or not, into an abyss of debt. We are the luckiest family I know, we have amazing support and I am blessed with great coverage from my employer. Even with that you see what a game is played with these providers. Drs. and insurance companies in constant debate about what is "needed" and what is wanted. An endless stream of letters of "medical necessity" clearly designed to slow the process and delay benefits. Every initial claim is denied, then reviewed, then approved or denied again because they need more info and yet another "medical review". Then ultimately approving what was clearly a necessity from day one, at least 30-45 days after it was needed. In the middle of it all are amazing nurses, Drs, and parents all trying desperately to do the right thing for their loved ones. It is absolutely exhausting to keep up, but I am motivated by getting Jo everything he needs regardless of denials and bureaucracy. I am 100% certain, as I've learned this lesson with my autistic son previously, the insurance company is counting on your weakness, banking on you forgetting, capitalizing on your frustration, and drawing every request out as long as possible, assuming you will give up, they've got the wrong family is they expect that.
Enough negativity, we cannot thank you all enough for the support, we are blessed, and Jo is doing better everyday. He has already defied every prediction about his future, and he and God are just getting started!
Jojobinks, keep smiling for us it lifts us so high we can'T help but cry. You are coming back completely and the Lord is with you. We will be patiently waiting with you, God is giving us strength to rely on his plan. We love you to the moon and back sweet angel, YOU'VE GOT THIS!!!
8/28/2017 11:40:52 am
See that Joe Joe is on his way back thank the Lord for that and you and Alex and the family just to know that when his friends come there that he recognizes them which totally means that he is on his way back pray every night for Jojo we all do it we all think about you all the time so happy to hear this news it really is overwhelming and awesome and we know Joe Joe is on his way back it's just a matter of time time is what we have
8/28/2017 12:04:54 pm
I am so happy to hear this wonderful update about Jo and his cognitive abilities and physical state! His determination will bring more healing! Geoffrey and I send love and prayers to all of you! Much Love from Maryland
8/28/2017 02:54:15 pm
So happy to hear JoJo's progress is going so well. With your faith and strength JoJo will be your miracle. Prayers always 🙏
8/28/2017 02:59:56 pm
So happy to hear that Jo is making tremendous progress. Baby steps, day by day he will make it through this. 🙏🏻
9/5/2017 09:29:27 pm
Great news on Jojo's progress. You two are amazing!! The insurance companies must know you did not give up on your child when the days were the darkest and you will not give up on fighting for coverage on his medical expenses. Keep up the good work!!
9/6/2017 03:56:03 am
You all are amazing, your steadfastness and unwavering faith. While most of us go on with our lives you continue through this trial one day at a time and shamefully we forget about your struggles, your need for prayer, your restricted life. The lives of the rest of your family and how they have been affected.
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