After one week it is a blessing to see Jo at home, comfortable, and healing. He seems more and more comfortable every day and his stats reflect it. His heart rate is strong and has had no problems oxygenating even when he is bothered or agitated. All around good news.
His first nurse Sergei has now been with Jo for over 48 hours and continues to learn all about Jo. He is caring and attentive and a true asset to Jo's overall care. He keeps a very close eye on Jo's habits, condition, and notes everything for follow up with Jo's docs. We are blessed to have him with Jo.
In the past 2 days we have met 2 additional nurses both whom seemed like great additions to Jo's care plan. Ideally we would have some type of nurse coverage every day, the industry for home nursing works hard to meet a great demand. We are blessed to have found 3 people we feel we can trust with our son.
Jo is solid and mom and dad are definitely felling more comfortable providing for all of Jo's needs. As we improve how we do thing with Jo we move quicker and Jo has less agitation. Even caring for his trach has become less scary, and mom is excellent at a speedy and efficient cleaning.
Jo continues to show more and more reactive behaviors. He flinches if there is a loud sound, opens his eyes when someone comes in the room, and focuses on the people talking to him. In addition Jo moves his body more than ever, he stretches at least 4-5 times a day and curls up his body at times and rolls on his side. He has a very strong cough, which is a great signal of respiratory muscular strength. When he sneezes his whole head comes of the bed! We are blessed.
Jojobinks there are armies of people praying for you. Everyone realizes that God is doing his work in you and returning you to whole. You have already amazed us with your progress and we know there is much more to come! One day at a time, one miracle at a time. We are home with you and love being able to spend time with you so easily. We are here patiently waiting, rest and heal baby boy. We love you to the moon and back sweet angel, you've got this!