Journal entry by james witzman — a minute ago
Great night for Jo with no brainstorming at all. Jo is extremely stable, all vitals signs have been solid, he is breathing well (sounds like he is snoring), and it is amazing to see his improvement from when we arrived 3 weeks ago.
Jo had a few visitors last night, and moving forward we welcome anyone to come say hi. Please text Alex (206-473-1211) or I (206-697-6121) if you're planning to come by. Our schedules are becoming more regular. Generally arriving in the evening has worked best around 7 pm. We've had time to meet in the cafeteria seating area, chat, eat something, and go see Jo. If you want to just stop by and say a quick hello or prayer let us know and we can put your name on the list.
It requires no login (but please sign the guestbook), is very user-friendly, allows for much better content, has connections to facebook and instagram, and lets everyone post comments and pictures for everyone to see ( Share love section).
Jo is still scheduled for tracheotomy surgery Tuesday at 1300. We are praying and asking for all of Jo's friends and family to pray with us that he will not need this procedure. His performance this weekend and Monday will dictate next steps. We also understand that if a tracheotomy is necessary it may not be permanent and it will be best for Jo at this time. We like to think not performing this surgery is more of indication of just how well Jo is doing, that is why we are praying that it is not needed!
Jo is also regulating his own temperature now with no support. He has had a raised temp for several weeks combated with Tylenol and ibuprofen to regulate. It is nice to see less and less support needed for Jo!
I feel once again obligated to thank everyone for the generous donations. We are both overwhelmed by everyone's support. Today we started reviewing a home bed and a few other essentials, and without your support, we don't know what we would do. Even a basic bed is over 5k and we will need in home nursing, so you can imagine how daunting the future looks to us. We are so lucky to have all of you!
Jojobinks we are here waiting for you to open your eyes. We love you so much, we miss your smile, your laugh, and those beautiful eyes (not to mention those dimples). Be strong my son, one miracle at a time. God is holding you, come back to us soon! We are so proud of you and love you to the moon and back sweet angel.